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Last Reply: I m miserable & NucyntaSecretMe7 posted:
Hi everyone,

I m having a tough day, so I thought I d post and vent, and also share information about this brand new drug I was prescribed.

First off, I had fusion back surgery in January 2009. I ve gotten myself off the strong drugs - I was taking 80 mgs of ER oxycontin WITH Loratab 10 in between doses. I wanted off that strong stuff so though it was challenging, I did. Lately, I need about 20 mgs of Loratab to relieve my pain. But, I was just switched to a pain management doc who I saw on Friday and he has prescribed Nucynta. It is a brand new drug, just approved in June. It is an opiate, but without acetaminiphen. On Friday eve, I was fine with it and thought it was working ok. But by Saturday, my back pain was noticably worse and I was limping again. Today, I m near tears and the Nucynta has not helped at all. Added to that, I can now tell I m in withdrawals - I have continual diarhhea, and a runny nose. I have called my pain doc, and I m going back to see him around lunch time today.

My back is awful. The sacrum (area top of my bottom), and right sciatic area are BURNING. I m emotional because I m starting to realize my life may never be what it once was. I ll probably never be able to be pain free or as active as I was in the past. And I m only 39 years old. I m overwhelmed at trying to deal with this the rest of my life. My spine surgeon (neuro) was worried that my thin size would not handle the fusion hardware well. . but he recommends that the hardware not come out until a year post surgery. I do think though, that at this point it s time for another MRI or CT scan, so I ll be calling to inquire about that.

My other issue is headaches. Since a young child, I have suffered from headaches. I then started getting hormonal migraines after the birth of my DD in 2005. For the past 3 days, I ve had a continual headache - not a migraine, but a very bad headache. It does wax and wane a little, but it is quite bad and even woke me up throughout the night. It s also giving me tracers. This is when I move my head or eyes, and it feels like my brain and vision take a few seconds to catch up. The nucynta has eased my headache a teensy bit, but not much. I M MISERABLE, and I can feel my mental state getting me back to where I was before surgery. Pain sucks.

Anyway, I guess there s not much any one can say, and I guess I don t really have any questions other than wondering if anyone else is on Nucynta and what they think.

Thanks for your Reply!
190 Replies |Watch This Discussion | Report This| Share this:I m miserable & NucyntaHi everyone,

I m having a tough day, so I thought I d post and vent, and also share information about this brand new drug I was prescribed.

First off, I had fusion back surgery in January 2009. I ve gotten myself off the strong drugs - I was taking 80 mgs of ER oxycontin WITH Loratab 10 in between doses. I wanted off that strong stuff so though it was challenging, I did. Lately, I need about 20 mgs of Loratab to relieve my pain. But, I was just switched to a pain management doc who I saw on Friday and he has prescribed Nucynta. It is a brand new drug, just approved in June. It is an opiate, but without acetaminiphen. On Friday eve, I was fine with it and thought it was working ok. But by Saturday, my back pain was noticably worse and I was limping again. Today, I m near tears and the Nucynta has not helped at all. Added to that, I can now tell I m in withdrawals - I have continual diarhhea, and a runny nose. I have called my pain doc, and I m going back to see him around lunch time today.

My back is awful. The sacrum (area top of my bottom), and right sciatic area are BURNING. I m emotional because I m starting to realize my life may never be what it once was. I ll probably never be able to be pain free or as active as I was in the past. And I m only 39 years old. I m overwhelmed at trying to deal with this the rest of my life. My spine surgeon (neuro) was worried that my thin size would not handle the fusion hardware well. . but he recommends that the hardware not come out until a year post surgery. I do think though, that at this point it s time for another MRI or CT scan, so I ll be calling to inquire about that.

My other issue is headaches. Since a young child, I have suffered from headaches. I then started getting hormonal migraines after the birth of my DD in 2005. For the past 3 days, I ve had a continual headache - not a migraine, but a very bad headache. It does wax and wane a little, but it is quite bad and even woke me up throughout the night. It s also giving me tracers. This is when I move my head or eyes, and it feels like my brain and vision take a few seconds to catch up. The nucynta has eased my headache a teensy bit, but not much. I M MISERABLE, and I can feel my mental state getting me back to where I was before surgery. Pain sucks.

Anyway, I guess there s not much any one can say, and I guess I don t really have any questions other than wondering if anyone else is on Nucynta and what they think.
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spiels69 responded:
To SecrectMe7:

I just read your post (in tears). I see it was 10 months ago you wrote it. I am 40 years old wrign this May of 2010. I just filled a presc for Nucynta 10 mins ago ! I am NOT a pill taker but suffer from dail chronic pain that has taken over my entire life !!!! I too am small framed and (was) quite active. Now I barely leave the house and can do nothing for my pain. I have 3 hearniated bulging discs in my neck-cervical spine as well as arthritis & many other things goiing on. I have a new MRI each year and they are worse and worse. I ve triec EVERYTHING and now an considering surgery. No spine surgeon has told me yet that I will be pain free (although I know they can) but I am still seeing doctors. I was just wondering how you wre making out and how the Nucynta has worked for you. . .
If I don t check back here, please feel free to e-mail me at dolfan1028@aol. com . Thank. Michelle

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Report This| Share this:I m miserable & NucyntaTo SecrectMe7:

I just read your post (in tears). I see it was 10 months ago you wrote it. I am 40 years old wrign this May of 2010. I just filled a presc for Nucynta 10 mins ago ! I am NOT a pill taker but suffer from dail chronic pain that has taken over my entire life !!!! I too am small framed and (was) quite active. Now I barely leave the house and can do nothing for my pain. I have 3 hearniated bulging discs in my neck-cervical spine as well as arthritis & many other things goiing on. I have a new MRI each year and they are worse and worse. I ve triec EVERYTHING and now an considering surgery. No spine surgeon has told me yet that I will be pain free (although I know they can) but I am still seeing doctors. I was just wondering how you wre making out and how the Nucynta has worked for you. . .
If I don t check back here, please feel free to e-mail me at dolfan1028@aol. com< a> . Thank. Michelle

greg8846 responded:
Hello To All That Posted On This Thread

For those of you that don t already Nucynta is a narcotic pain medications and it is also very habit forming. i did read a couple of threads here that folks thought it was not habit forming so please be careful when your taking this medication. Good luck.

Greg

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Report This| Share this:I m miserable & NucyntaHello To All That Posted On This Thread

For those of you that don t already Nucynta is a narcotic pain medications and it is also very habit forming. i did read a couple of threads here that folks thought it was not habit forming so please be careful when your taking this medication. Good luck.

Greg

napleslynn replied to greg8846 s response:
Thanks to all who have posted in this forum. It has been most helpful and eye-opening. I have suffered for 20 years from various ailments of my neck and upper back. For the first two years, I went through the process of testing, therapy. medications, stopping at surgery to correct a ruptured disk at C5-C6. Tired of the whole process, I learned to live with it.

Finally, a little over a year ago I could no longer function and sought out a PM specialist who did trigger point injections and prescribed totally ineffective non-narcotic medications. He finally gave up and sent me to a PM anesthesiologist. He is wonderful and did a variety of injections culminating in a Rhizotomy for which he prescribed Nycynta for post-surgical pain. At first, it seemed to be OK and actually helped with the pain but after about a week, I found I was less able to function even though I was only taking before bed (it was prescribed for every 4-6 hours!!!). Now I find if I take it, I get great pain relief after 1 2 hour, followed by weird thoughts and once I get to sleep I don t want to wake up. The next day, I am wacked out for most of the day.

Following the Rhizotomy, I developed occipital and neck neuralgia and was prescribed Lyrica. That is a nightmare and a whole other story. I am going to try to see him this week for something that works but lets me function. I don t know what it is yet but it is definitely NOT Nucynta or Lyrica.

Lynn

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Report This| Share this:I m miserable & NucyntaThanks to all who have posted in this forum. It has been most helpful and eye-opening. I have suffered for 20 years from various ailments of my neck and upper back. For the first two years, I went through the process of testing, therapy. medications, stopping at surgery to correct a ruptured disk at C5-C6. Tired of the whole process, I learned to live with it.

Finally, a little over a year ago I could no longer function and sought out a PM specialist who did trigger point injections and prescribed totally ineffective non-narcotic medications. He finally gave up and sent me to a PM anesthesiologist. He is wonderful and did a variety of injections culminating in a Rhizotomy for which he prescribed Nycynta for post-surgical pain. At first, it seemed to be OK and actually helped with the pain but after about a week, I found I was less able to function even though I was only taking before bed (it was prescribed for every 4-6 hours!!!). Now I find if I take it, I get great pain relief after 1 2 hour, followed by weird thoughts and once I get to sleep I don t want to wake up. The next day, I am wacked out for most of the day.

Following the Rhizotomy, I developed occipital and neck neuralgia and was prescribed Lyrica. That is a nightmare and a whole other story. I am going to try to see him this week for something that works but lets me function. I don t know what it is yet but it is definitely NOT Nucynta or Lyrica.

Lynn

usetopain replied to cweinbl s response:
I had my last back surgery Feb 09. it was my fourth one and since the surgeries started way back when, they fused instead of anything else. So now my whole back is fused which limits my range of motion. If the doc would have told me that I would no longer be able to stand up straight-----------I WOULD HAVE SAID NO TO SURGERY. . . You can have all metal, screws, etc removed once healed.
I have been in chronic pain every since I can remember and continued to work until sept05 when I could no longer get in and out of my car without help. So please don t cry me a river. . you get yourself back to the doc and get something else to relieve pain. I have never been without pain, even with meds and yes I get depressed because I am only 57 and can t do any activities. I use a walker, get tired easy, but I don t give up. This degenerative disc disease has stricken all my siblings, so we all suffer and wish someone cared enough to find out why this has happened.

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Report This| Share this:I m miserable & NucyntaI had my last back surgery Feb 09. it was my fourth one and since the surgeries started way back when, they fused instead of anything else. So now my whole back is fused which limits my range of motion. If the doc would have told me that I would no longer be able to stand up straight-----------I WOULD HAVE SAID NO TO SURGERY. . . You can have all metal, screws, etc removed once healed.
I have been in chronic pain every since I can remember and continued to work until sept05 when I could no longer get in and out of my car without help. So please don t cry me a river. . you get yourself back to the doc and get something else to relieve pain. I have never been without pain, even with meds and yes I get depressed because I am only 57 and can t do any activities. I use a walker, get tired easy, but I don t give up. This degenerative disc disease has stricken all my siblings, so we all suffer and wish someone cared enough to find out why this has happened.

greg8846 replied to napleslynn s response:
Hi

Thank you for your return thread, this is not the first time that i have heard about Nucynta causing problems. I don t think it works well for any kind of pain. I have read studies about it.
In fact when it first came out there were a few cases of doctors being miss informed about the potential to be habit forming
which it is. If i were you i would ask my doctor to prescribe a
small starter dose of Oxycontin. most likely the 40mg tablet
twice a day would help with your pain. I know with what you have going on and the severity of that type of pain Nucynta is not going to help you to much nor i the Lyricka, they both have psychological problems that need to be addressed the same way with Cymbalta it causes a lot of folks to have suicidal tendency which i find to be more of a huge problem when we are suffering from Chronic Pain already. Did you notice the Nucynta would give you that foggy feeling in your sleep and when you woke up you felt like you were on a all night drunk, for lack of a better explanation. It is bad in that way. Well if there is any other questions i can answer for you please let me know and i would be glad to help.
Greg Armstrong

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Report This| Share this:I m miserable & NucyntaHi

Thank you for your return thread, this is not the first time that i have heard about Nucynta causing problems. I don t think it works well for any kind of pain. I have read studies about it.
In fact when it first came out there were a few cases of doctors being miss informed about the potential to be habit forming
which it is. If i were you i would ask my doctor to prescribe a
small starter dose of Oxycontin. most likely the 40mg tablet
twice a day would help with your pain. I know with what you have going on and the severity of that type of pain Nucynta is not going to help you to much nor i the Lyricka, they both have psychological problems that need to be addressed the same way with Cymbalta it causes a lot of folks to have suicidal tendency which i find to be more of a huge problem when we are suffering from Chronic Pain already. Did you notice the Nucynta would give you that foggy feeling in your sleep and when you woke up you felt like you were on a all night drunk, for lack of a better explanation. It is bad in that way. Well if there is any other questions i can answer for you please let me know and i would be glad to help.

cloverover replied to smilecd s response:
Iam using Nucynta for sever back pain. I had been taking Morphine short and long acting for a while. That worked very well but then I had an ischemic colitis attack. I never had one before. I ended up in the hospital for a week and no conclusion on what was the cause. But they told me morphine could have contributed to it. Since it was an awful experience I wanted off the morphine. So now I am taking 75mg of Nucynta, It needs a little extra to cover all my pain but it lasts about 4 hours and then I take another one. At night I take Oxycontin or Methadone. I take one 20mg Oxy. or 10mg Methodone. We are trying to find out which one of those I like the best. Any ways this has been working for mee now for about a week and a half. I do feel I have less energy and I have headaches at night and I am having cramping but I think this will get better with time. My doctor told me that the longer you use it the better it works. We shall see. I am sorry so many of you are not doing well on this. Maybe the dose was wrong or you need a helping drug with it for a while. It is supose to be not as dehydrating as other narcotics. I hope this info. helps some of you.

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Report This| Share this:I m miserable & NucyntaIam using Nucynta for sever back pain. I had been taking Morphine short and long acting for a while. That worked very well but then I had an ischemic colitis attack. I never had one before. I ended up in the hospital for a week and no conclusion on what was the cause. But they told me morphine could have contributed to it. Since it was an awful experience I wanted off the morphine. So now I am taking 75mg of Nucynta, It needs a little extra to cover all my pain but it lasts about 4 hours and then I take another one. At night I take Oxycontin or Methadone. I take one 20mg Oxy. or 10mg Methodone. We are trying to find out which one of those I like the best. Any ways this has been working for mee now for about a week and a half. I do feel I have less energy and I have headaches at night and I am having cramping but I think this will get better with time. My doctor told me that the longer you use it the better it works. We shall see. I am sorry so many of you are not doing well on this. Maybe the dose was wrong or you need a helping drug with it for a while. It is supose to be not as dehydrating as other narcotics. I hope this info. helps some of you.

JAY19781978 replied to cloverover s response:
I have had 2 major back surgeries. And I been through the mill with, every type of pain medications you can think of. I took 80mg oxycotin for 10 yrs. All that stuff is BAD,BAD, news. I take 150mg of methodome a day & I feel the way I did before for I had any back problems, & the way I did before I was put on all them EVIL DRUGS, whiched messed up my life. Or should I say destroyed it. The other drugs changes who you are. With the Meth, I still have some bad days like when it rains. But its not that bad, where I feel like I m losing my mind. And If I don t hurt I could go a couple days without my meds. With ALMOST NO WITHDRAW. You can become addicted to it like anything else. But it s take a long time. And once who find the right dose of Methodome, you will not have to keep moving up your dose every couple yrs. Beleive me, my back is the worst of the worst. I got a couple feet of metal rods, going from my shoulders, down to my butt. THE METHODOME IS A GOD SENT. I don t think I would be here if it wasn t for the the Meth. The pain was making me go crazy. I hope this helps you. I just wish someone would have told me this and saved 10,15yrs of my life

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Report This| Share this:I m miserable & NucyntaI have had 2 major back surgeries. And I been through the mill with, every type of pain medications you can think of. I took 80mg oxycotin for 10 yrs. All that stuff is BAD,BAD, news. I take 150mg of methodome a day & I feel the way I did before for I had any back problems, & the way I did before I was put on all them EVIL DRUGS, whiched messed up my life. Or should I say destroyed it. The other drugs changes who you are. With the Meth, I still have some bad days like when it rains. But its not that bad, where I feel like I m losing my mind. And If I don t hurt I could go a couple days without my meds. With ALMOST NO WITHDRAW. You can become addicted to it like anything else. But it s take a long time. And once who find the right dose of Methodome, you will not have to keep moving up your dose every couple yrs. Beleive me, my back is the worst of the worst. I got a couple feet of metal rods, going from my shoulders, down to my butt. THE METHODOME IS A GOD SENT. I don t think I would be here if it wasn t for the the Meth. The pain was making me go crazy. I hope this helps you. I just wish someone would have told me this and saved 10,15yrs of my life

An_223056 replied to JAY19781978 s response:
Hey Jay, I m glad to hear of a success story. But I m wondering why you are dead against oxycontin or other long acting medications? So why do you think all of the other medications are evil ? I say whatever works for one may not work for another, but I never thought pain relief to be evil . Why, if you don t mind, did it mess up your life? It sounds like the back surgeries may have messed up your life. Not trying to sound critical at all, I m actually loving the fact that you are almost entirely pain free because that is rare, but I am not so sure where you are coming from about the medications. I get why you are posting because it has saved the past 10-15 years of your life, but if the oxycontin works for one and not the other, then what s the difference? Why were you introduced to methadone in the first place? I ve never tried it but I have considered it. I just don t know how to say it to my pain doctor, ya know?

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Report This| Share this:I m miserable & NucyntaHey Jay, I m glad to hear of a success story. But I m wondering why you are dead against oxycontin or other long acting medications? So why do you think all of the other medications are evil ? I say whatever works for one may not work for another, but I never thought pain relief to be evil . Why, if you don t mind, did it mess up your life? It sounds like the back surgeries may have messed up your life. Not trying to sound critical at all, I m actually loving the fact that you are almost entirely pain free because that is rare, but I am not so sure where you are coming from about the medications. I get why you are posting because it has saved the past 10-15 years of your life, but if the oxycontin works for one and not the other, then what s the difference? Why were you introduced to methadone in the first place? I ve never tried it but I have considered it. I just don t know how to say it to my pain doctor, ya know?

annette030 replied to An_223056 s response:
I have taken the evil drug morphine and now I am on methadone, but at far, far less than Jay is. I think it is up to the individual, but really they are all pretty much the same. I only switched because the methadone is far cheaper and I am on Medicare now and wish to avoid the dreaded donut hole.

I found them all pretty much the same. There are no medical studies that I know of that show any one opioid is better or safer than another. I believe it is all in the dosing and timing.

Methadone is naturally long acting, so it is true you can skip a dose without going into withdrawals, but I could skip a dose of MS Contin and not go into withdrawals either.

I just asked my doctor for methadone because it is cheaper. I explained to her how I would like to switch over and she was willing to work with me to do that. I did and I am very happy with it.

I would not change drugs unless I had a good reason to, if everything is going great, I would stick with what I am doing. I was on MS Contin for over ten years without any problems.

Take care, Annette

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Report This| Share this:I m miserable & NucyntaI have taken the evil drug morphine and now I am on methadone, but at far, far less than Jay is. I think it is up to the individual, but really they are all pretty much the same. I only switched because the methadone is far cheaper and I am on Medicare now and wish to avoid the dreaded donut hole.

I found them all pretty much the same. There are no medical studies that I know of that show any one opioid is better or safer than another. I believe it is all in the dosing and timing.

Methadone is naturally long acting, so it is true you can skip a dose without going into withdrawals, but I could skip a dose of MS Contin and not go into withdrawals either.

I just asked my doctor for methadone because it is cheaper. I explained to her how I would like to switch over and she was willing to work with me to do that. I did and I am very happy with it.

I would not change drugs unless I had a good reason to, if everything is going great, I would stick with what I am doing. I was on MS Contin for over ten years without any problems.

Take care, Annette

An_223057 replied to annette030 s response:
I have a ruptured C4, bulging C5 and what my Dr described as a straight Cervical Spine. I have been on hydrocodone and roboxin for 3 years and the bottom line is they no longer works. I am in pain all the time. Worse yet, the pain is such that I only sleep for an hour or so at a time and the lack of sleep causes migraines. Mine are classic migraines with aura and devastating. as if I was not already in enough pain. I just went to my PM Dr today and he is unwilling to give me anything stronger because Savella and Lyrica were not options. I m allergic to Lyrica and I might as well had been eating candy taking the Savella - it did nothing for my pain level. And the side effects of Savella - Flop sweat is too much having just had a hysterectomy. There are not any other PM Drs in my area and I am at a loss. How can I explain to him that the pain is affecting every part of my life. I have tried without success. Now he wants to repeat the injections we tried 3 years ago when all this begin (they did not work then) To me the risk associated with the anesthesia are not outweighed by the hope they injections will work this time. I just took a new job and cannot afford to stay home in pain. I feel like I am missing out on my daughter s growing up. Sick and tired of being sick and tired!!! Any help is GREATLY appreciated!

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Report This| Share this:I m miserable & NucyntaI have a ruptured C4, bulging C5 and what my Dr described as a straight Cervical Spine. I have been on hydrocodone and roboxin for 3 years and the bottom line is they no longer works. I am in pain all the time. Worse yet, the pain is such that I only sleep for an hour or so at a time and the lack of sleep causes migraines. Mine are classic migraines with aura and devastating. as if I was not already in enough pain. I just went to my PM Dr today and he is unwilling to give me anything stronger because Savella and Lyrica were not options. I m allergic to Lyrica and I might as well had been eating candy taking the Savella - it did nothing for my pain level. And the side effects of Savella - Flop sweat is too much having just had a hysterectomy. There are not any other PM Drs in my area and I am at a loss. How can I explain to him that the pain is affecting every part of my life. I have tried without success. Now he wants to repeat the injections we tried 3 years ago when all this begin (they did not work then) To me the risk associated with the anesthesia are not outweighed by the hope they injections will work this time. I just took a new job and cannot afford to stay home in pain. I feel like I am missing out on my daughter s growing up. Sick and tired of being sick and tired!!! Any help is GREATLY appreciated!

annette030 replied to An_223057 s response:
I would definitely refuse to have a repeat set of injections if I had already done that and it didn t help. Doesn t make sense to me to repeat it, but maybe someone knows more than I do about these injections.

I am 59 and was told over ten years ago that I had the cervical spine of a ninety year old. Bad DDD with herniations, spurs, etc. I had one discectomy about 18 years ago when the function of my hands were affected. I didn t have a lot of pain at that time. I also have a long history of migraines, no aura though.

For me, any loss of sleep increases my pain levels. I have found that I just had to keep experimenting with meds to find the right ones. My old doctor and I finally just stopped all the meds and started over. I took ambien for sleep and Norco (generic) for pain. After I moved, I added neurontin and a long acting pain med, first just at night, then 24 7. I have been using that basic formula for many years now, it works for me, but it may not for you. I tried antidepressants of many kinds years ago and they make me worse, not better. Occasionally, my doctor and I have tried other things, but they didn t help so we stopped them.

I guess I would keep a log of what you do and what your pain levels are each day, include your meds, dose and times. Show it to your doctor and ask him what he would suggest you try differently to make things better. Tell him specific goals that you would like to be able to do with better pain control.

If he can t help you, ask him to refer you to someone who can.

Take care, Annette

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Report This| Share this:I m miserable & NucyntaI would definitely refuse to have a repeat set of injections if I had already done that and it didn t help. Doesn t make sense to me to repeat it, but maybe someone knows more than I do about these injections.

I am 59 and was told over ten years ago that I had the cervical spine of a ninety year old. Bad DDD with herniations, spurs, etc. I had one discectomy about 18 years ago when the function of my hands were affected. I didn t have a lot of pain at that time. I also have a long history of migraines, no aura though.

For me, any loss of sleep increases my pain levels. I have found that I just had to keep experimenting with meds to find the right ones. My old doctor and I finally just stopped all the meds and started over. I took ambien for sleep and Norco (generic) for pain. After I moved, I added neurontin and a long acting pain med, first just at night, then 24 7. I have been using that basic formula for many years now, it works for me, but it may not for you. I tried antidepressants of many kinds years ago and they make me worse, not better. Occasionally, my doctor and I have tried other things, but they didn t help so we stopped them.

I guess I would keep a log of what you do and what your pain levels are each day, include your meds, dose and times. Show it to your doctor and ask him what he would suggest you try differently to make things better. Tell him specific goals that you would like to be able to do with better pain control.

If he can t help you, ask him to refer you to someone who can.

Take care, Annette

victimofpain replied to chkppam s response:
Hello everyone! I am a chronic pain sufferer and have been for nearly 15 years. I started with a broken coller bone that no doctor found it broken for 1 and 1 2 years and during that time I was told I was seeking drugs or it was all in my head so someone I met introduced me to the street drug heroin since I was in such pain and no doctor would help me I became addicted to that and have been using that as a pain aid for spinal stenosis, degenerative disc disease, deteriating discs and also for the badly broken coller bone. Well 8 doctors later my coller bone was so badly broken I finally found a orthopedic doctor who had to do surgery. Now that is somewhat better I am still addicted to heroin!!! Now I went to the doctor a week ago and had a MRI of the other shoulder and of my back too find out I have bulging discs all the way up my spine and tendonitis in my shoulder. When I say I am actually going crazy from the pain Im in that is an understatement. My doctor reffered me to pain management. Its about time someone believes me about the pain Im in . Now maybe someone can tell me this If I tell the pain management doctor Ive been using heroin for pain since no one believed me about the pain will he or she still help me? My husband said that they will not prescribe any opiate because I am addicted to heroin. I dont want to use heroin no more Ive been in so much trouble legally because of the stuff that I am now on probation. My probation officer is going to violate me because I was ordered to go impatient and because of the severe pain I am in I wont be excepted in to a rehab being on opiates but the good news is she told me to get into pain management right away and have the pain doctor write a letter to her explaining my diagnosis, pain meds, and also I have to let the pain management doctor know that I am currently addicted and the doctor must aware my probation officer that I told him what I was addicted too. Will I have a problem with a pain management doctor because of this? Some people turn to other opptions when they have been denied there pain for so long so I must not be the only one that has been addicted before pain management am I right PLEASE. . . Someone help me with this I will appreciate anyones help. Once I am actually helped with this severe pain I wont need to do the street drug any more. I am not a pill person so I do take meds as prescribed even if it is percocet. So I wont have a problem in that aspect. I just never found a pain management doctor who actually took medicaid. Thank god I went to a new primary doctor who gave me the name of the pain doctor who does take medicaid. And for all of you I understand what pain is so take care of the most important YOU
Erin

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Report This| Share this:I m miserable & NucyntaHello everyone! I am a chronic pain sufferer and have been for nearly 15 years. I started with a broken coller bone that no doctor found it broken for 1 and 1 2 years and during that time I was told I was seeking drugs or it was all in my head so someone I met introduced me to the street drug heroin since I was in such pain and no doctor would help me I became addicted to that and have been using that as a pain aid for spinal stenosis, degenerative disc disease, deteriating discs and also for the badly broken coller bone. Well 8 doctors later my coller bone was so badly broken I finally found a orthopedic doctor who had to do surgery. Now that is somewhat better I am still addicted to heroin!!! Now I went to the doctor a week ago and had a MRI of the other shoulder and of my back too find out I have bulging discs all the way up my spine and tendonitis in my shoulder. When I say I am actually going crazy from the pain Im in that is an understatement. My doctor reffered me to pain management. Its about time someone believes me about the pain Im in . Now maybe someone can tell me this If I tell the pain management doctor Ive been using heroin for pain since no one believed me about the pain will he or she still help me? My husband said that they will not prescribe any opiate because I am addicted to heroin. I dont want to use heroin no more Ive been in so much trouble legally because of the stuff that I am now on probation. My probation officer is going to violate me because I was ordered to go impatient and because of the severe pain I am in I wont be excepted in to a rehab being on opiates but the good news is she told me to get into pain management right away and have the pain doctor write a letter to her explaining my diagnosis, pain meds, and also I have to let the pain management doctor know that I am currently addicted and the doctor must aware my probation officer that I told him what I was addicted too. Will I have a problem with a pain management doctor because of this? Some people turn to other opptions when they have been denied there pain for so long so I must not be the only one that has been addicted before pain management am I right PLEASE. . . Someone help me with this I will appreciate anyones help. Once I am actually helped with this severe pain I wont need to do the street drug any more. I am not a pill person so I do take meds as prescribed even if it is percocet. So I wont have a problem in that aspect. I just never found a pain management doctor who actually took medicaid. Thank god I went to a new primary doctor who gave me the name of the pain doctor who does take medicaid. And for all of you I understand what pain is so take care of the most important YOU
Erin

annette030 replied to victimofpain s response:
It sounds like because of the probation officer you will be forced to be honest with your doctor, that is a good thing for you in the long run, but it might be tougher for the short term.

Some pain management doctors have associates that manage addiction in patients who need it, and it sounds like that might be helpful for you. I don t know if your new pain management doctor does that or not, you will have to see when you talk to him.

You may need to detox off of the heroin just to find out what your pain levels are now that you got your clavicle fixed. Then you and your doctor can assess the pain you do have and decide how best to handle it. Opiates may not be the answer for you at this time. There may be other treatments that work better for you.

MRI results are not accurate predictors of pain.

This is a big challenge for you, best of luck to you.

Take care, Annette

Thanks for your Reply!
Report This| Share this:I m miserable & NucyntaIt sounds like because of the probation officer you will be forced to be honest with your doctor, that is a good thing for you in the long run, but it might be tougher for the short term.

Some pain management doctors have associates that manage addiction in patients who need it, and it sounds like that might be helpful for you. I don t know if your new pain management doctor does that or not, you will have to see when you talk to him.

You may need to detox off of the heroin just to find out what your pain levels are now that you got your clavicle fixed. Then you and your doctor can assess the pain you do have and decide how best to handle it. Opiates may not be the answer for you at this time. There may be other treatments that work better for you.

MRI results are not accurate predictors of pain.

This is a big challenge for you, best of luck to you.

Take care, Annette

transcriber52 replied to victimofpain s response:
Hello victimofpain hope you are doing ok today. When do you go to your new PM Dr? I do think it might be best for you to be up front and honost with your new Dr before they prescribe new meds. Can you get off the heroin that easily or do you really need that rehab? That s something you need to answer only to yourself. Any pain relief they try to give you now while you still use the heroin you will be disappointed in. You will like the high you feel now not having to deal with your pain. Real pain management will not be that easy for you at this point because you already have yourself up to a higher tolerance level than most pain meds will make you feel. That will not mean the meds are not working, it just won t make you feel so euphoric with the meds. You may even go into a depression and need to treat that as well as the pain issues. I am so sorry you have felt the need to go this direction for pain management but now that you have a new Dr you will need to be compliant with their med orders to have any pain relief. Maybe they can try something like methadone. I don t know what they will choose for you but you do need to be honost with your addiction up front. You just need to come to terms with the fact that you will still have some pain and not have that high feeling you now get with the morphine. By what you have written about your probation issues you kinda already know what your answer is but we are here if you need to talk ok. Very good luck to you with the new PM Dr and getting off the heroin. Street drugs are never a good answer for us. We already have enough issues without having to deal with law inforcement about drug issues. Good luck and please let us know how it goes for you. You have a good day.
Trans.

Thanks for your Reply!
Report This| Share this:I m miserable & NucyntaHello victimofpain hope you are doing ok today. When do you go to your new PM Dr? I do think it might be best for you to be up front and honost with your new Dr before they prescribe new meds. Can you get off the heroin that easily or do you really need that rehab? That s something you need to answer only to yourself. Any pain relief they try to give you now while you still use the heroin you will be disappointed in. You will like the high you feel now not having to deal with your pain. Real pain management will not be that easy for you at this point because you already have yourself up to a higher tolerance level than most pain meds will make you feel. That will not mean the meds are not working, it just won t make you feel so euphoric with the meds. You may even go into a depression and need to treat that as well as the pain issues. I am so sorry you have felt the need to go this direction for pain management but now that you have a new Dr you will need to be compliant with their med orders to have any pain relief. Maybe they can try something like methadone. I don t know what they will choose for you but you do need to be honost with your addiction up front. You just need to come to terms with the fact that you will still have some pain and not have that high feeling you now get with the morphine. By what you have written about your probation issues you kinda already know what your answer is but we are here if you need to talk ok. Very good luck to you with the new PM Dr and getting off the heroin. Street drugs are never a good answer for us. We already have enough issues without having to deal with law inforcement about drug issues. Good luck and please let us know how it goes for you. You have a good day.
Trans.

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